A glimpse of Hope

Today I saw a glimpse of hope. A glimpse of what be some shadow vision. We knew all along that the process in unclear what Kinsley is facing. All we know is that her vision is several impacted to the point of being labeled blind.

Today we had the Vision Instructor out to the house. She did multiple tests with Kinsley and also read out loud the reports from the eye doctor and explained in more detail what those words meant. She was such an encouragement in this great roller coaster ride we are living.

Here was my glimpse of hope! Kinsley tracked something. A big something, but she tracked. Although her immediate fixation on this rather large object was delayed she did end up catching a glimpse of it and then proceeded to follow. Once it crossed her mid line and to the other side of her body she would lost it. She was following a 12 inch by 12 inch square black paper.

Here is the kicker. When doing these tests with the VI teacher it was very hit and miss. Kinsley only responded to stimuli in her vision 25 percent of the time and out of those times it was a delayed response 90 percent of the time. This means that her vision is so inconstant that its hard to even know what she is really responding to. The other factor in today's events in that testing was done in an "non typical" setting. This means that all other distractions were taken away. There was no brothers and sisters running around. There was no TV on. There was no other things to distract Kinsley.

The VI teacher also said it is hard to test Kinsley because her hearing is so super. She can hear the softest whisper and dropping of items. This means if you crinkle the page she is going to be looking at in the slightest bit, she is going to be gazing in that direction.

Both the eye doctor from reading her report and the VI teacher have are leaning to CVI which is also called Cortical Blindness. Something that will effect Kinsley her whole life, which we have been expecting any way. It does however mean that she may see some things. CVI can change your vision on a minute by minute, day by day basis. One minute she may be "seeing" something and the next she can be completely blind.

As you can tell this is a frustrating journey. I have wanted to jump for joy all day, but at the same time I don't want to get my hopes up to high. I am so happy and feel so blessed that she tracked even with a delay so few times. I am however still worried and scared about how to help her develop in the future. This is not going to be an easy disease to work with. Blindness, CVI, whatever is in store for her will not only be hard for us, but for her. She will be different. She will have to endure so much.

Please thank the Lord with us for such small improvements. Also ask the Lord to continue to be with us through this roller coaster of a ride.