Wednesday, October 24, 2012

Life's Journey

Life's Journey is this crazy, unpredictable, sometimes amazing, sometimes crappy road that once you think you have it figured out it takes another unexpected turn. When I started this blog in the wake a very difficult time in life I dreamed of keeping it going. About growing it to something more then keeping those people that we do not get to speak to on a daily basis informed about our sweet Butterfly Girl and how she is doing. I wanted my readers to share a piece of my life with me. I wanted others to feel like they could connect and relate. I wanted other mom's, wife's, daughter's, sister's, and friend's to know that they are not alone in this road so many of us call life. We may not be struggling with exactly the same things or going through the same events, but at the end of the day we can someone relate to each other.

I lost blogging for a while. I took it out of my overly packed schedule and I came to a point the other day that brought me right back to blogging. I realized I blog most importantly for myself. So that years from now I can look back and see my family through a less hectic, busy eye. There are some days that I just strive to make it through an hour of this crazy life we live. So my goal is that if I document what we live I can come back and enjoy those moments a bit more. Or I may be able to come back and heal from the pain I still have from things. I know even today I have read the posts made about my sweet baby girl's vision and it is still very hard, but it is part of the healing process. Blogging is a way for me to feel like I invested in myself and invested in someone else. Maybe one day, someone will stumble across and say, "wow I thought I was alone, but this blogger felt the same way". Maybe that has happened and I don't know. My hope is that someday the blog will be more then just a place I lay my heart, but a source of hope, encouragement, and understanding to someone else.

I blog because I love writing. Ever since I was a young child writing was always my favorite thing to do. In high school I took as many writing classes as I could. Always dreaming of becoming an author was fun, but it always took second place to becoming a wife and a mother. Blogging is kind of like being an author in a way. I get to publish what I want people to read. I get to share my work with others and that is a satisfying thing. I love what I am doing and I am so glad to becoming back!

I blog because I want to keep all of you up to date on the latest findings on Butterfly Girl's diagnosis. Although I have been lacking in that department it will be a commitment of mine to try to keep up. The latest news with our sweet girl is that she sees twenty percent of her day. Her CVI is something that she will live and will learn to adjust to. What got us down most recently was our last trip to the eye doctor. While Butterfly Girl can see twenty percent of the day the vision she does have is very poor. She has a pretty strong prescription in her lens. While this might not concern the average person it concerns us. The reason this is cause for concern is because the vision she does have will slowly get worse, making the prescription in her lens stronger and stronger. This will eventually get to the point were her vision can no longer be corrected. Our baby girl will then officially be blind forever. This breaks our hearts. This makes us so incredibly said. This makes us hurt so deeply. We do have a God who is in the business of working miracles and we know they can happen! We believe that if it is HIS will he will heal our sweet girl. She turned 1 and despite the rocky first year we had an amazing celebration with family and friends.

I love blogging. I am glad to be back. I hope all of you will continue to read. I hope you will all share if you find something that may be an encouragement or source of hope to someone else.

I leave you with the verse my children are memorizing for church. Romans 8:28 "And we know that God causes everything to work together for the good of those who love God and are called according to his purpose for them."

How amazing is that! If we live life in accordance to God's calling he will work everything together for good for us, his people. That doesn't mean that God isn't going to let us go through hard times such as Butterfly Girl's diagnosis. That doesn't mean that bad things are not going to happen to us because they will, but when the time is right, when HIS time is right, ALL things will work together for the good of HIS people. I am so excited to know the truth of the Lord.

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