My baby girl is an amazing! She is a huge gift from God! Blindness will not tear our family down! We have a MOVER! Yes you read that right. Our baby girl is crawling, army style that is. It's amazing to watch her move, but so sad when she cries because she has run into an object that she can not see.
Butterfly Girl has what is called CVI, which means that she can see some times and other times she can not. We have noticed that for Butterfly Girl, her vision is not there more then it is. With CVI Butterfly girls vision can change minute by minute and day by day. This is difficult. I so badly want her to see 100% of the time, but that is not what God gave us. God gave us an amazing girl, full of smiles, with eyes that have an amazing hope in them, but can not see.
Butterfly girl is behind developmentally. She still isnt sitting great on her own yet. She is having some feeding difficulty. She doesnt really enteract with toys that she has in her hands. All of these things are due in part to her not being able to see. When I start to feel down about one of these things God goes and gives me the best gift of all. He reminds me of what she can do and then shows me something new!
I am over joyed by the blessing she has been in our life. The road traveled is long and hard, but the Lord rewards those who stay on his path. Please continue to stay with us on this journey. The Lord is guiding us to do great things for him. The Lord is calling our Butterfly Girl to use those beautiful blue eyes and amazing smile to do his good work.
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